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Newly Diagnosed & Family Support

A welcoming space for those who are newly diagnosed, as well as their families, to ask questions and seek guidance.

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Newly Diagnosed & Family Support
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New to OI?

Introduce yourself and ask questions.

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Family Support Corner

For families seeking advice and sharing experiences.

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Stories

Unbreakable is a short documentary portrait focusing on a charismatic young lady Jodie Owen, who was born with Osteogenesis Imperfecta. Moving, thought provoking and engaging, Unbreakable is a story that will stay with you well after the credits have ceased.
Sarah Richards View all

Stories

Debbie is from Western Australia and has type 4 OI. Hear Debbie tell her own inspiring OI story.
Older lady sitting in wheelchair View all

Stories

Tessa is from Mandurah, in Western Australia. She was diagnosed at the age of five with type 1 OI after breaking her femur. Tessa is the only person in her family with OI. Hear Tessa describe her journey.
Tessa's story View all

Stories

Leo was diagnosed with type 1 OI 18 months ago. Leo's dad also has OI. Listen to Leo and his mum tell Leo's story.
Leo's story View all

News and events

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